Wednesday, June 09, 2010

My Crazy Life

Things in my life have been a little bit crazy as of late so sit back and enjoy this post!

The Blog Contest
I won the blog contest! I was so excited, humbled and I really couldn't believe it. Thanks to everyone who voted for me, read the post and for all of the sweet comments. I really do have the best support system and I am so blessed to be able to call all of you friends and family. The basket I received was so awesome! We are still enjoying some of the goodies and the basket is now holding piano music.

A Brain Injury

Most of the reason that I haven't blogged since April 19 is because of what happened on April 21st. I woke up and I wanted to take my anti-nausea medicine before I ate but I couldn't remember which medicine to take. I asked my mom and she was immediately concerned that something was wrong. After that I don't remember anything but I tried to put the water pitcher back into the fridge and I thought my bedroom was the laundry room. Mom put me on my bed and I was non responsive but still breathing. She said my eyes were glazed over and I wouldn't answer her. She immediately called 911 and I got to ride in ambulance for the first time..too bad I don't remember the ride.
I had two Grand Mal Seizures while in the ambulance bay in the hospital and after an MRI the doctors thought I might have a brain infection. I didn't talk to anyone except I did say my brothers nickname when he asked me if I knew him. I was transferred to another hospital in the same system and put into ICU where I stayed for two days. The following day I wasn't talking still and I had another MRI where it was discovered I had a condition called PRES which stands for Posterior reversible encephalopathy syndrome. It is caused by a combination of the medications I take for my transplant and high blood pressure. I had been having horrible headaches for about 6 months previous and this is also a symptom of this condition.
By the following day, I was talking and eating but had lost my short term memory for the past 2 days. I don't remember anything until that night and I don't remember anything previous to my taking my medication on the 21st. It was quite a weird feeling to say the least to be unable to remember the year or who the president was. I only know what happened from stories from my family and friends which were quite hilarious to say the least. I also had no filter so whatever came into my head came out of my mouth and that also led to some funny moments.
I was told in the hospital that I would be unable to drive for 6 months and that was the one thing that I wasn't so excited about. If you know me at all you know I like to be in control and I especially like being able to go where I want when I want. Not that I have been going very many places as of late but still I like having the option. But when I went for my follow up visit with the neurologist he said that I could drive 2 weeks after I stopped the anti-seizure medication. On June 15th I will no longer be 15 and unable to drive! I am looking forward to that day for sure!

Dialysis at Home

Peritoneal dialysis at home is going very well. A week after I was released from the hospital, I was in training to do the dialysis and now I have been doing dialysis myself for about a month. I am so happy to be in charge of my own treatment and to be free from going to the dialysis center three times a week. The training was good but there were some things I wish were explained more clearly and some things that I didn't need to know a thousand times. But everyone learns at different rates so I would assume the training needs to be flexible enough for different kinds of learners.

Feeling Good

I am feeling so much better and actually have some energy to go and do. It is amazing that we are at a point to replace the function of an organ. Wow. I feel really blessed to still be here on this earth with my family and friends. My support system is so awesome especially my parents and I couldn't do anything without them. They are the best!

Thanks again for all your love and prayers.


thepainterfamily said...

you are amazing katherine.
I am so happy you won that contest, it was so very deserved.

You are looking beautiful and full of life these days, and concidering what the last few months have looked like, that is a testament to your vivacious and resilant spirit!

Eliza said...

All I have to say is: WE LOVE YOU TERRIBLY MUCH MUCH MUCH KATHRYN!!! And miss you too, of course.

So, it's June 16th now... where was the first place you drove to on your own?!