The Blog Contest
I won the blog contest! I was so excited, humbled and I really couldn't believe it. Thanks to everyone who voted for me, read the post and for all of the sweet comments. I really do have the best support system and I am so blessed to be able to call all of you friends and family. The basket I received was so awesome! We are still enjoying some of the goodies and the basket is now holding piano music.
A Brain Injury
Most of the reason that I haven't blogged since April 19 is because of what happened on April 21st. I woke up and I wanted to take my anti-nausea medicine before I ate but I couldn't remember which medicine to take. I asked my mom and she was immediately concerned that something was wrong. After that I don't remember anything but I tried to put the water pitcher back into the fridge and I thought my bedroom was the laundry room. Mom put me on my bed and I was non responsive but still breathing. She said my eyes were glazed over and I wouldn't answer her. She immediately called 911 and I got to ride in ambulance for the first time..too bad I don't remember the ride.
I had two Grand Mal Seizures while in the ambulance bay in the hospital and after an MRI the doctors thought I might have a brain infection. I didn't talk to anyone except I did say my brothers nickname when he asked me if I knew him. I was transferred to another hospital in the same system and put into ICU where I stayed for two days. The following day I wasn't talking still and I had another MRI where it was discovered I had a condition called PRES which stands for Posterior reversible encephalopathy syndrome. It is caused by a combination of the medications I take for my transplant and high blood pressure. I had been having horrible headaches for about 6 months previous and this is also a symptom of this condition.
By the following day, I was talking and eating but had lost my short term memory for the past 2 days. I don't remember anything until that night and I don't remember anything previous to my taking my medication on the 21st. It was quite a weird feeling to say the least to be unable to remember the year or who the president was. I only know what happened from stories from my family and friends which were quite hilarious to say the least. I also had no filter so whatever came into my head came out of my mouth and that also led to some funny moments.
I was told in the hospital that I would be unable to drive for 6 months and that was the one thing that I wasn't so excited about. If you know me at all you know I like to be in control and I especially like being able to go where I want when I want. Not that I have been going very many places as of late but still I like having the option. But when I went for my follow up visit with the neurologist he said that I could drive 2 weeks after I stopped the anti-seizure medication. On June 15th I will no longer be 15 and unable to drive! I am looking forward to that day for sure!
Dialysis at Home
Peritoneal dialysis at home is going very well. A week after I was released from the hospital, I was in training to do the dialysis and now I have been doing dialysis myself for about a month. I am so happy to be in charge of my own treatment and to be free from going to the dialysis center three times a week. The training was good but there were some things I wish were explained more clearly and some things that I didn't need to know a thousand times. But everyone learns at different rates so I would assume the training needs to be flexible enough for different kinds of learners.
I am feeling so much better and actually have some energy to go and do. It is amazing that we are at a point to replace the function of an organ. Wow. I feel really blessed to still be here on this earth with my family and friends. My support system is so awesome especially my parents and I couldn't do anything without them. They are the best!
Thanks again for all your love and prayers.